The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers
Approximately one in every seven children under 18 years of age, or 14 percent of children in the United States, has a special health care need. Children with special health care needs (CSHCN) have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and also require health and related services of a type or amount greater than that required by children generally. The report, The Affordable Care Act and Children with Special Health Care Needs: An Analysis and Steps for State Policymakers, developed by the National Academy for State Health Policy (NASHP) for the Catalyst Center at Boston University reviews and analyzes key provisions of the Affordable Care Act (ACA) relevant for CSHCN to help inform state policymakers’ decisions. This webinar presented highlights from the analysis, including steps that state policymakers can take to address the needs of CSHCN as states work on health care reform. A panel of state and federal officials shared their perspectives on the report.
Moderator: Carol Tobias, Director, the Health and Disability Working Group; Principal Investigator, the Catalyst Center at the Boston University School of Public Health
Webinar Overview
Speaker: Meg Comeau, Project Director, the Catalyst Center at Boston University School of Public Health
CSHCN: Who They Are, What They Need and the Challenges Their Families Face
Speaker: Kathleen Farrell, Senior Advisor, National Academy for State Health Policy
Key Provisions in ACA for CSHCN
Speaker: Catherine Hess, Managing Director for Coverage and Access, National Academy for State Health Policy
Steps for Policymakers
Reactor: Liz Fowler, Deputy Director, Office of Consumer Information and Insurance Oversight
Reactor: Linda Peltz, Division of Benefits and Coverage, Center for Medicaid, CHIP and Survey and Certification, Centers for Medicare and Medicaid Services (CMS)
Reactor: Phyllis Sloyer, Division Director, Children’s Medical Services Network and Related Programs, Florida Department of Health; Member, NASHP Academy; President, Association of Maternal and Child Health Programs
Reactor: Steve Fitton, Director, Medical Services Administration, Michigan Department of Community Health

For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































