Coordinating Services With and For Persons with Disabilities: A Challenge for State Government
This paper reflects the conversations and considerations of a focus group of 18 individuals representing persons with disabilities and their advocates and State and Federal officials. Convened to review the National Academy for State Health Policy’s recent publication, A Guide to Federal Programs for People With Disabilities, the group was invited to muse about how State governments could re-engineer themeselves to improve our policies and practices affecting persons with disabilities. The result of those conversations is this paper, which sets forth a framework for re-thinking policy for persons with disabilities and strengthening State’s capacities to work closely with consumers to forge more comprehensive and coordinated care for persons with disabilities and their families. This paper is not a comprehensive analysis of models and their strengths and weaknesses; rather, it is a first step to convene consumers and policymakers to envision a new and better way of doing business together. Much more analysis and demonstration is needed, but this paper presents the range of possibilities available if Federal programs serving persons with disabilites could be better coordinated or consolidated.
| 1995.Aug_.coordinating.services.persons.disabilities.challenge.pdf | 2 MB |

For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































