Engaging Consumers in Health Care Decisions
Speakers:
Richard Figueroa, Leah Hole-Curry
Marilyn Schlein Kramer
Marsha Regenstein
In this session, a panel will explore different ways states can promote meaningful consumer engagement and patient-centered care by actively involving consumers, patients, and advocates in health care and treatment decisions. This session will begin by sharing lessons learned from consumer engagement strategies (such as consumer-centered websites) being implemented by communities participating in the Robert Wood Johnson Foundation’s Aligning Forces for Quality initiative. It will then explore the effects of statewide social marketing activities to patients in Massachusetts, along with a partnership between state policy makers and a health consumer organization in that state. Finally, this session will look at the informed and shared decision-making tools being piloted in Washington State.

For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































