Low Income Children with Disabilities: How Will They Fare Under Health Care Reform?
The purpose of this report is to alert public and private decision makers who are engaged in the health reform debate to the special circumstances facing low-income children with disabilities. These children require more care, different and specialized care, and more costly care than children without disabilities. Some benefit greatly from many of the services covered by the Medicaid program that are not reimbursable under private insurance plans; but too many of them are uninsured, underinsured, or cut off from vital support that could facilitate their well-being and development. Health reform could rectify may of the inadequacies of our current delivery and financing systems in meeting the special needs of this group of children.
| 1994.Aug_.low_.income.children.disabilities.health.care_.reform.pdf | 1.4 MB |


For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































