The Next Wave: Integrating Services for Individuals with Intellectual or Developmental Disabilities
Thursday, August 16th
1:30pm – 3:00pm
Individuals with intellectual and developmental disabilities (I/DD) often use extensive long-term services and supports, but face significant barriers to accessing health care and dental services. Though states have traditionally excluded this population from managed care, a growing number of states are moving to a capitated model to increase coordination and accountability. This session features speakers from two states that have taken different approaches to implement managed care for individuals with I/DD. Topics include stakeholder engagement and state strategies for transitioning to managed care.
Speakers
Patti Killingsworth, Assistant Commissioner and Chief of LTSS, Tenncare
Dawn Lambert, Manager, Community Options Strategy Group, Division of Health Services, State of Connecticut
Dawn Lambert manages the Community Options Strategy Group within Connecticut’s Department of Social Services. With over 25 years of experience in long-term services and supports, she currently serves as an appointed member of the National Academy for State Health Policy LTSS Committee, an advisor to the AARP LTSS Scorecard and a consultant to the Department of Justice regarding community options for older adults and people with disabilities.
Denise Rozell, Director of Policy Innovation, Association of University Centers on Disabilities
Denise has over twenty-five years of experience in disability policy at the federal and state level working on almost all issues and legislation affecting individuals with disabilities, beginning with the Americans with Disabilities Act. Before joining AUCD, Denise spent 15 years as the Assistant Vice President for State Government Relations at Easter Seals, as the primary resource to Easter Seals 75 affiliates in building capacity to increase awareness of and support for disability issues in state government. During that time, Denise developed expertise on issues of state policy and systems change including autism, Medicaid managed care, ACA implementation and health delivery system reform. Prior to coming to Easter Seals, Denise was the Executive Director of the Association for Education and Rehabilitation of the Blind and Visually Impaired, an international professional membership organization. Denise holds a BA from Occidental College and a JD from the University of California at Berkeley.
For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 
