Parent Report: % of Children Screening (Spanish Version)
As I mentioned at the July meeting, at the time we were in the middle of our cognitive interviews, in Spanish, of the parent-reported items that assess whether a standardized developmental screening tool was administered.
The interviews are complete the items performed well. Unfortunately, I can’t figure out how to attach a document on this web forum right now. So, if you would like a copy of the English and Spanish version of these items, please email me (reulandc@ohsu.edu) and I will send them to you. (They will also be on our CAHMI website as of Monday (www.cahmi.org)
As a reminder, these items (one survey item with two follow-up questions) assess whether a parent-completed standarized tool was administered and can be added to any parent survey you may be implementing.
We were supported by the CWF to conduct extensive development and testing of the items with parents who we knew did and didn’t complete a screening tool to validate them for measurement purposes.
The items were included in the 2007 National Survey of Children’s Health, and therefore national and state-level data will be available for them and additional cognitive testing was performed by the NSCH steering group to ensure validity..
Let me know if you would like the survey items and any additional information about the development or testing of these items.
For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 
