Blazing the Trail of Reform for Children and Youth with Special Health Care Needs
Wednesday, October 21, 2015
9:00-10:30am
Families with children and youth with special health care needs (CYSHCN) face unique challenges as they navigate complicated, often-siloed support systems. This session will feature three states participating in the Systems Integration Academy, a technical assistance community for states that received funding from the Maternal and Child Health Bureau to test and implement new strategies to better coordinate care for CYSHCN. Panelists, who represent both public health and Title V, will discuss the promising practices being piloted and lessons learned from early innovations.
This session is supported through a National Organizations of State and Local Officials Cooperative Agreement with the Health Resources and Services Administration
Moderator
[CherylRoberts]Speakers
[JeanneMcAllister]
[RylinRodgers]
[SharonFleischfresser]
[JimaelJohnson]

For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































