In Their Own Words: Family Caregivers from Across the Country Share their Priorities and Recommendations

Three-fourths of the responses came from family caregivers across the age spectrum and of varying racial and ethnic backgrounds, with the remaining from organizations. The responses convey the financial, physical, and emotional stresses that caregiving creates and capture the intense need that caregivers have for appropriate financial supports, the ability to have some time off, and help with everyday tasks.
The RAISE Council will incorporate this input in its report to Congress. This report was made possible by funding from The John A. Hartford Foundation to NASHP’s RAISE Family Caregiver Resource and Dissemination Center in collaboration with the ACL.
Report: In Their Own Words: Caregiver Priorities and Recommendations: Results from a Request for Information, by LeadingAge LTSS Center at UMass Boston and Community Catalyst, February 2021.

For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































