Webinar: A New Approach to Assessing Family Engagement in Health Care Systems
Wednesday, Jan. 23, 2019
10-11 a.m. (PST)
Health care providers, payers and systems serving children, youth and families increasingly focus on family engagement as a strategy to improve health care delivery, enhance consumer and provider satisfaction, and reduce costs. Assessing how well an organization or agency is engaging families is a critical step in achieving these goals. A recent issue brief from Family Voices, A Framework for Assessing Family Engagement in Systems Change, proposes four domains of family engagement – representation, transparency, impact and commitment. We explore this framework, share models of success and discuss common barriers to incorporating meaningful family engagement in systems-level initiatives. We suggest attendees read the issue brief prior to the event. Audience Q&A is highly encouraged. Register here.
Speakers:
- Beth Dworetzky, Project Manager, Family Voices
- Nanfi Lubogo, Co-Executive Director, PATH Parent to Parent/Family Voices of Connecticut
- Susan Chacon, President, Association of Maternal and Child Health Programs and Title V Director for Children’s Medical Services, Children and Youth with Special Health Care Needs program, New Mexico
Moderator:
- Beverley H. Johnson, BSN, FAAN, President and Chief Executive Officer, Institute for Patient- and Family-Centered Care
For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 
