Webinar: State Strategies for Using Shared Plans of Care to Improve Care Coordination for Children and Youth with Special Health Care Needs
Wednesday, October 31, 2018
3:00pm to 4:00pm EDT
Children and youth with special health care needs (CYSHCN) currently comprise nearly 20 percent or 14.6 million of the US pediatric population between ages birth to 18 years. Many CYSHCN require significant care coordination across a continuum of physical health, behavioral health, and educational supports, as well as coordination with social, financial, and community-based services and supports. To improve care coordination for CYSCHN, health care delivery systems are increasingly using of integrated health care teams, health information technology, and actionable, comprehensive plans of care, individually referred to here as a shared plan of care (SPoC). Guided by the patient and family and the child’s care team, a SPoC describes shared goals, negotiated actions, and assigns responsibility for various actions and activities to address the diverse needs of the child or youth with special health care needs, both medical and non-medical. Adopting SPoCs as an expected aspect of chronic care can enhance patient- and family-centered health care delivery and overcome some of the barriers to controlling costs and ensuring quality.
This national webinar featured a national overview by Jeanne McAllister, an expert from the Indiana University School of Medicine, and presentations from representatives from Oregon and Iowa, two states that have implemented SPoC for CYSHCN.




For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































