What Families Think about Cost-Sharing Policies in SCHIP
This paper reports on findings from a series of focus groups with parents of current and former SCHIP enrollees in Alabama, Nevada, New Hampshire, and New Jersey. The focus groups were designed to explore parents’ feelings about and experiences with cost sharing. The groups addressed the following topics: attitudes about paying premiums and copayments, opinions about premium and copayment amounts, and aspects of the premium payment process (such as periodicity, billing and payment methods, and penalties for late and missed payments).
The focus groups were an invaluable tool in studying SCHIP, yielding nuanced, multifaceted results not attainable from surveys or analysis of enrollment data. The groups provided in-depth insight into parents’ experiences with their state SCHIP programs and the cost-sharing elements of those programs.
| SCHIP_families_costsharing.pdf | 1.4 MB |


For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































