Integrated Care Standards for Children with Special Health Care Needs Take Root In States
The Association of Maternal & Child Health Programs (AMCHP) recently released a set of national standards for programs serving children and youth with special health care needs. These standards are designed for use by a range of stakeholders to build and improve upon systems of care for these children. A national expert will present an overview of the standards, an Iowa official will discuss use of standards in Title V, and a District of Columbia official will discuss use of standards in Medicaid.
Moderator
Glenace Edwall, Acting Assistant Commissioner, Chemical and Mental Health Services Administration, Minnesota Department of Human Services
Speakers
Edward Schor, Senior Vice President, Lucille Packard Foundation for Children’s Health
Deb Waldron, University of Iowa Children’s Hospital, Child Health Specialty Clinics
Colleen Sonosky, Associate Director, Government of the District of Columbia, Division of Children’s Health Services, Health Care Delivery Management Administration, Department of Health Care Finance

For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































