Children and Youth with Special Health Care Needs
FEATURED ARTICLE
State Approaches to Providing Home Health Services to Children with Medical Complexity Enrolled in Medicaid
/in Policy Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Community Health Workers, COVID-19, Health Coverage and Access, Health Equity, Integrated Care for Children, Maternal, Child, and Adolescent Health, Population Health, Social Determinants of Health, Workforce Capacity /by Kate Honsberger, Ellen Bayer, Anna Matilde “Tilly” Tanga and Karen VanLandeghemToolkit: National Standards for Children and Youth with Special Health Care Needs
/in Policy Toolkits Behavioral/Mental Health and SUD, Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, CHIP, Chronic and Complex Populations, Chronic Disease Prevention and Management, Cost, Payment, and Delivery Reform, Eligibility and Enrollment, EPSDT, Featured Policy Home, Health Coverage and Access, Health Equity, Health IT/Data, Healthy Child Development, Integrated Care for Children, Integrated for Pregnant/Parenting Women, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Medicaid Managed Care, Physical and Behavioral Health Integration, Population Health, Quality and Measurement, Social Determinants of Health /by NASHP StaffThe National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) define the core components of a comprehensive, coordinated, and family-centered system of care for CYSHCN.
National Standards for CYSHCN One-Pagers Showcase Most Utilized Domains
/in Policy Featured News Home Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Integrated Care for Children, Maternal, Child, and Adolescent Health /by NASHP StaffStates’ Recent 1115 Waiver Applications Include Provisions to Support Children during the Pandemic
/in COVID-19 State Action Center Blogs, Featured News Home Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, COVID-19, Health Coverage and Access, Health Equity, Integrated Care for Children, Maternal, Child, and Adolescent Health, Population Health, Workforce Capacity /by Kate HonsbergerMore than a dozen states have recently submitted 1115 waiver applications that have the potential to safeguard access to care and increase support for children during the COVID-19 pandemic. If approved, these 1115 waivers would be retroactively to March 1, 2020, and expire “no later than 60 days after the end of the public health […]
State Medicaid Strategies to Maintain Access to Care for Children with Special Health Care Needs during the Pandemic
/in COVID-19 State Action Center Blogs, Featured News Home Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, COVID-19, Maternal, Child, and Adolescent Health /by Kate Honsberger and Karen VanLandeghemStates and the federal government are taking unprecedented steps to address the health needs of individuals impacted by COVID-19, including children and adults with chronic and complex health care conditions who are vulnerable to infection and to changes in the health care delivery system that may impact their ability to access much-needed primary and specialty […]
Serving Children and Youth with Special Health Care Needs in Medicaid Managed Care: Targeted Contract Language
/in Medicaid Managed Care Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Cost, Payment, and Delivery Reform, Featured Policy Home, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Program Design, Quality and Measurement, Special Populations and Services /by Kate Honsberger, Anna Matilde “Tilly” Tanga and Karen VanLandeghemCMS Requests Input to Better Coordinate Care for Children with Complex Conditions from Out-of-State Providers
/in Policy Blogs, Featured News Home Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, CHIP, Chronic and Complex Populations, Chronic Disease Prevention and Management, Cost, Payment, and Delivery Reform, EPSDT, Health Equity, Health System Costs, Integrated Care for Children, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Population Health, Social Determinants of Health /by Kate HonsbergerThe Centers for Medicare & Medicaid Services (CMS) recently released a request for information (RFI) for input from states, providers, health systems, and families to better coordinate care from out-of-state providers for children with complex health conditions enrolled in Medicaid. The deadline to submit comments is March 23, 2020. States have long addressed issues of […]
How States Use the National Standards for CYSHCN in their Health Care Systems
/in Policy Charts, Featured News Home, Maps Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Cost, Payment, and Delivery Reform, Integrated Care for Children, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Population Health, Quality and Measurement, Quality and Measurement /by NASHP StaffMontana Uses Patient-Centered Medical Homes to Holistically Address Children’s Health Needs
/in Policy Montana Blogs Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, CHIP, CHIP, Chronic and Complex Populations, Cost, Payment, and Delivery Reform, Eligibility and Enrollment, EPSDT, Essential Health Benefits, Health Coverage and Access, Healthy Child Development, Integrated Care for Children, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Physical and Behavioral Health Integration, Primary Care/Patient-Centered/Health Home, Quality and Measurement /by Emma WatsonMontana recently expanded its Patient-Centered Medical Home (PCMH) program benefits to most children enrolled in Medicaid and the state’s Children’s Health Insurance Program (CHIP). Montana enhanced its PCMH program by: Expanding the pool of approved providers; Increasing the number of quality measures that must be tracked; and Adding complex care management (CCM) – a coordinated […]
NASHP and States Develop National Care Coordination Standards for Children with Special Health Care Needs
/in Policy Blogs Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Chronic Disease Prevention and Management, EPSDT, Healthy Child Development, Integrated Care for Children, Maternal, Child, and Adolescent Health, Population Health /by Karen VanLandeghem and Kate HonsbergerCare coordination has long been a core component of state efforts to improve health outcomes, reduce caregiver and patient burden, decrease health care costs, and strengthen systems of care for children and adults with chronic and complex conditions. The National Academy for State Health Policy (NASHP), with support from the Lucile Packard Foundation for Children’s […]

For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 
























































































































































National Care Coordination Standards for Children and Youth with Special Health Care Needs (CYSHCN): Proceedings from the National Forum on Care Coordination for CYSHCN
/in Maternal, Child, and Adolescent Health, Policy Featured News Home, Reports Children/Youth with Special Health Care Needs /by Olivia Randi