CHILDREN/YOUTH WITH SPECIAL HEALTH CARE NEEDS
FEATURED ARTICLE
Public Insurance Financing of Home Visiting Services: Insights from a Federal/State Discussion
/in Policy Blending and Braiding Funding, Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, CHIP, CHIP, Chronic and Complex Populations, Chronic Disease Prevention and Management, Health Coverage and Access, Integrated Care for Children, Long-Term Care, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Physical and Behavioral Health Integration, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Taylor Platt and Karen VanLandeghemMedicaid Supports for Family Caregivers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Chronic Disease Prevention and Management, Cost, Payment, and Delivery Reform, Council Meeting Materials and Resources, Long-Term Care, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Population Health, Program Design, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Neva Kaye and Salom TeshaleFamily caregivers help Medicaid enrollees safely stay in their own homes, prevent or delay hospital and nursing facility stays, and provide personal care services that Medicaid agencies would otherwise need to pay for. However, there are strong indications that family caregivers need additional supports, which would benefit the Medicaid enrollees in their care. Recognizing family […]
National Care Coordination Standards for Children and Youth with Special Health Care Needs
/in Policy Reports Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, CHIP, Chronic and Complex Populations, Integrated Care for Children, Maternal, Child, and Adolescent Health, Physical and Behavioral Health Integration /by NASHP StaffNASHP Releases National Care Coordination Standards for Children and Youth with Special Health Care Needs
/in Policy Blogs, Featured News Home Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Healthy Child Development, Integrated Care for Children, Maternal, Child, and Adolescent Health /by NASHP StaffThe National Academy for State Health Policy (NASHP) has released a new set of standards to help states provide high-quality care coordination for children and youth with special health care needs (CYSHCN). Care coordination is an important strategy to improve the quality of health care and reduce costs, and state officials are increasingly using it […]
States Are Increasing their Use of Medicaid Managed Care for Children and Youth with Special Health Care Needs
/in Medicaid Managed Care Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Chronic Disease Prevention and Management, Cost, Payment, and Delivery Reform, Eligibility and Enrollment, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Population Health, Program Design, Special Populations and Services /by Olivia Randi and Kate HonsbergerA new, 50-state analysis of Medicaid managed care programs by the National Academy for State Health Policy (NASHP) shows that in the past three years, state Medicaid managed care (MMC) programs have: Enrolled more children and youth with special health care needs (CYSHCN); Provided more services to them through managed care; and Launched more specialized […]
State Roles in Preventing and Improving Foster Care Placements for Children with Medical Complexity
/in Policy Featured News Home, Reports Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Integrated Care for Children, Maternal, Child, and Adolescent Health, Physical and Behavioral Health Integration /by Catherine HessState Strategies to Safely Transition Children with Special Health Care Needs Back to School
/in Policy Blogs, Featured News Home Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, COVID-19, Health Equity, Maternal, Child, and Adolescent Health, Population Health, Social Determinants of Health /by Eskedar GirmashAs states explore back-to-school remote or in-person learning options, they are developing strategies to meet the needs of children and youth with special health care needs (CYSHCN) in their education and public health systems. These approaches include: Developing risk assessment tools for children and families; Increasing staffing to ensure physical distancing; Enhancing collaboration between education […]
Slide Deck: How States Can Improve Home Health Delivery for Children with Medical Complexity
/in Policy Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Maternal, Child, and Adolescent Health /by Kate Honsberger, Ellen Bayer, Anna Matilde “Tilly” Tanga and Karen VanLandeghemThis slide deck features innovative solutions states have implemented to address challenges in home health delivery, such as provider shortages, lack of coordination between Medicaid, Title V CYSHCN programs, and other stakeholders, and cumbersome prior authorization processes. Download the slide deck
Six States’ Strategies to Providing Home Health Services to Children Enrolled in Medicaid
/in Medicaid Managed Care Connecticut, Delaware, Iowa, Maryland, Ohio, Washington Blogs, Featured News Home Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Community Health Workers, COVID-19, Health Coverage and Access, Health Equity, Integrated Care for Children, Long-Term Care, Maternal, Child, and Adolescent Health, Physical and Behavioral Health Integration, Population Health, Social Determinants of Health, Special Populations and Services, Workforce Capacity /by Olivia Randi and Kate HonsbergerTo improve the quality of services for children and youth with special health care needs (CYSHCN) and reduce health care costs, states are implementing strategies to improve access to home health services. Of particular importance as states confront COVID-19-related budget challenges, home health services can help to avoid costly emergency department use, hospitalizations, and institutional […]

For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 
























































































































































Expanded Federal Investment in Home and Community-Based Services: State Approaches to Serve Children and Youth
/in Maternal, Child, and Adolescent Health, Policy Featured News Home, Reports Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs /by Zack Gould and Kate Honsberger