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The Affordable Care Act and Children with Special Health Care Needs
/in Policy Reports /by NASHP StaffThe Affordable Care Act (ACA) provides states with some important tools that can be utilized to provide more continuous, adequate and affordable coverage for children with special health care needs (CSHCN). How the law is interpreted and whether implementation challenges are addressed with the unique needs of CSHCN in mind will shape how well the ACA fulfills its promise to this vulnerable population. This paper developed by the National Academy for State Health Policy (NASHP) for the Catalyst Center at Boston University reviews and analyzes key provisions of the ACA relevant for CSHCN and provides suggestions for state policymakers.
Download here: The Affordable Care Act and Children with Special Health Care Needs
What Parents Say: Why Eligible Children Lose SCHIP
/in Policy Reports Health Coverage and Access /by NASHPBased on six focus groups in three states, this paper details parent perceptions of the SCHIP program and includes a summary of feedback on why some families have not continued to enroll their children in the program. Part of a larger, seven-state study, the report pays special attention to issues of retention, disenrollment, and re-enrollment.
| SCHIP_why_lose.pdf | 1016.7 KB |
Why Eligible Children Lose or Leave SCHIP
/in Policy Reports /by NASHPBased on focus groups and a telephone survey of nearly 4,000 parents, this report examines why eligible children have lost or lapsed SCHIP coverage. It also details parents’ overall satisfaction with SCHIP and with such program components as cost, access, and the renewal process.
| SCHIP_lose_or_leave.pdf | 1.1 MB |
Tough Choices: A Policy Maker’s Guide to Cost Containment Actions Affecting Children in Medicaid and SCHIP
/in Policy Reports /by NASHPThis paper examines cost containment strategies in Medicaid and SCHIP and their potential impact on children enrolled in these programs. It is designed to help states think through cost control measures, the potential savings to be realized from such actions, and their impact on children and families. It identifies a menu of cost containment options that states have considered, along with the pros and cons of those options.
| SCHIP_cost_containment.pdf | 327.6 KB |
Perspectives on Reauthorization: SCHIP Directors Weigh In
/in Policy Health Coverage and Access /by NASHPSCHIP’s current period of authorization is scheduled to end after federal fiscal year 2007. As reauthorization nears, policymakers at both the state and federal levels have begun to focus on areas of concern within the program and to identify recommendations for reform and improvement. This issue brief summarizes the perspectives and recommendations of those who manage the SCHIP programs in the states.
| SCHIP_perspectives_reauthorization.pdf | 295.6 KB |
What Families Think about Cost-Sharing Policies in SCHIP
/in Policy Reports Maternal, Child, and Adolescent Health /by NASHPThis paper reports on findings from a series of focus groups with parents of current and former SCHIP enrollees in Alabama, Nevada, New Hampshire, and New Jersey. The focus groups were designed to explore parents’ feelings about and experiences with cost sharing. The groups addressed the following topics: attitudes about paying premiums and copayments, opinions about premium and copayment amounts, and aspects of the premium payment process (such as periodicity, billing and payment methods, and penalties for late and missed payments).
The focus groups were an invaluable tool in studying SCHIP, yielding nuanced, multifaceted results not attainable from surveys or analysis of enrollment data. The groups provided in-depth insight into parents’ experiences with their state SCHIP programs and the cost-sharing elements of those programs.
| SCHIP_families_costsharing.pdf | 1.4 MB |
Reauthorizing SCHIP: Principles, Issues and Ideas from State Directors
/in Policy /by NASHPThis April 2007 Issue Brief describes the current views of SCHIP directors on key issues being considered in the reauthorization process. While it does not capture all of the views of all of the states on all issues relevant to reauthorization, it represents the views of most states on issues of priority concern to them.
The State Children’s Health Insurance Program (SCHIP) deservedly enjoys broad support as a successful program. That success rests on a legislative foundation enacted as a result of careful bi-partisan compromise. Title XXI of the Social Security Act established a federal-state partnership program with a delicate balance of state flexibility and core program requirements. SCHIP was created with the goal of providing health coverage for low-income, uninsured children. This essential program, now serving more than six million, is up for reauthorization this year.
Reauthorizing SCHIP is intended to inform federal policymakers working to review and renew SCHIP, as well as others concerned with its future, about the views of state SCHIP directors. It builds upon the 2005 report “Perspectives on Reauthorization: SCHIP Directors Weigh In.” These reports have been developed by the National Academy for State Health Policy (NASHP) through the generous support of the David and Lucile Packard Foundation as part of broader efforts to provide assistance for and report on state SCHIP programs over the past decade.
| reauthorizing_SCHIP.pdf | 416.3 KB |
Health Care of Children in Foster Care: Who’s Keeping Track?
/in Policy Reports Chronic and Complex Populations /by NASHPThis report looks at systems of tracking health care services and providers of care for children in foster care. It builds on a NASHP survey of health passport activity around the country and highlights innovative approaches. The report also analyzes the barriers to successful implementation and the implications of Medicaid HMO contracting on health passport systems.
| foster_health_care_tracking.pdf | 1.6 MB |
Reasons and Strategies for Strengthening Childhood Development Services in the Healthcare System
/in Policy Reports Cost, Payment, and Delivery Reform, Maternal, Child, and Adolescent Health /by NASHPThis report summarizes recent research on early brain development, highlights innovative practices in Washington, Kentucky, North Carolina, and California, and offers concrete steps states can take to strengthen early childhood development services.
| Childhood Development Services | 247.2 KB |
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For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 























































































































































