The RAISE Family Caregiving Advisory Council meets regularly to develop a national family caregiving strategy that states, communities, providers, and others can use to recognize and support family caregivers. Below are council materials and resources.
Blog: Supporting Family and Older Relative Caregivers: The Family Caregiving Advisory Council Marks One Year of Progress, September 2020 On Sept. 2, 2020, the US Administration for Community Living (ACL) published this blog describing the first year of activities of the Recognize, Assist, Include, Support, and Engage (RAISE) Act Family Caregiving Advisory Council. In its first year, the council held five public meetings, conducted a federal inventory of current programs and initiatives that could support family caregivers, identified opportunities to collaborate further and streamline efforts, and sought and documented input from caregivers, stakeholders, and others as part of the council’s work of writing a report to Congress and developing a National Caregiving Strategy. Read the blog.
August 2020 Meeting: The Family Caregiving Advisory Council met for the fifth time in mid-August to hear expert presentations on the parallels between recommendations issued by the National Alzheimer’s Project Act (NAPA) Advisory Council and the council’s own work to make recommendations to Congress to better support family caregivers. The council is established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act. Read a NASHP report on the meeting and view a video recording of the meeting and presentation slides, and learn more.
July 2020 Meeting: The Administration for Community Living (ACL) convened the Family Caregiving Advisory Council, established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act, for its fourth council meeting. Read NASHP’s report on the meeting, the agenda, and the presentation slides. Learn more about the council’s work at the ACL’s RAISE Family Caregiving Advisory Council’s webpage.
June 2020: Center for Medicare Advocacy Publishes Report, Medicare and Family Caregivers
The Center for Medicare Advocacy has written an issue brief, Medicare and Family Caregivers, as part of collaborative work to advance the RAISE Family Caregivers Act, Public Law 115-119. The RAISE Act directs the Department of Health and Human Services to develop and maintain a national family caregiver strategy that identifies actions and support for family caregivers in the United States. The center’s report explores the role Medicare does, and could, play in supporting older and disabled beneficiaries and their caregivers. The brief was written with support from The John A. Hartford Foundation.” The Medicare and Family Caregivers Issue Brief is available here.
May 2020 Meeting: The Administration for Community Living (ACL) held its third meeting of the Family Caregiving Advisory Council, established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act. Read a NASHP report about the meeting. The meeting (view agenda) occurred over two days, May 20 and 21, 2020. Read the minutes for May 20 and May 21 and watch the two afternoons of virtual meetings here. Learn more about the council’s work at this ACL webpage.
February 2020 Meeting: The Administration for Community Living (ACL) held its second meeting of the Family Caregiving Advisory Council, established by the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act, in February, read a NASHP report about the meeting. The meeting (view agenda) occurred over two days, Feb. 11 and 12, 2020. Read the Feb. 11 minutes and watch that day’s virtual meeting here and read the Feb. 12 minutes and watch that day’s Feb. 12 meeting here. Learn more about the council’s work at this ACL webpage.
Inventory of Key Family Caregiving Recommendations, April 2020. To assist the RAISE Act Family Caregiving Advisory Council make its recommendations, NASHP collected and analyzed about 800 recommendations from 27 key family caregiving reports written in the past decade. NASHP synthesized and inventoried the recommendations in this resource, with support from The John A. Hartford Foundation and in collaboration with the US Administration for Community Living. Learn more.
NASHP Awards RAISE Listening Session Contract, March 2020: NASHP, with support from The John A. Hartford Foundation, has awarded a contract to conduct caregiving listening sessions to Community Catalyst, in conjunction with LeadingAge LTSS Center @ UMass Boston and ET Consulting, LLC. The partners will analyze public input on family caregiving needs and conduct listening sessions for the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregiving Advisory Council. Learn more.
February 2020 Meeting: The council convened its second meeting and developed guiding principles and goals to help it begin to propose a national strategy. Read a report and learn more about the council’s work here.
August 2019 Meeting: The council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.
The Family Caregiving Advisory Council
The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving Strategy that recommends actions that different stakeholders can take to support family caregivers and meets their diverse needs. The RAISE Act also requires the secretary to convene a Family Caregiving Advisory Council to help inform and shape the strategy by providing recommendations to the secretary.
The council is charged with preparing a report for the secretary that includes effective models of family caregiving and support to family caregivers, as well as opportunities to improve coordination across federal government programs. The secretary will incorporate the council’s report in the strategy, in addition to identifying best practices and other information to support family caregivers. The RAISE Act requires the council to be made up of to 15 voting members who reflect the diversity of family caregivers and care recipients, as well as non-voting representatives from federal departments and agencies who play a role in this issue.
Council Meeting Materials and Resources
In August 2019, the council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.
State Resources
State Policy Innovations to Support Family Caregivers: States are developing new initiatives to support family caregivers, who provide nearly $470 billion in unpaid health care support and services each year to relatives, friends, and neighbors. Passage of the federal Recognize, Assist, Include, Support, and Engage Family Caregivers (RAISE) Act underscores the urgent attention this issue requires. This blog, State Policy Innovations to Support Family Caregivers, written with support from The John A. Hartford Foundation, explores Hawaii, Washington, and Minnesota’s innovative efforts to assist family caregivers.
Faculty
Laura Gitlin, PhD
Dean, College of Nursing and Health Professions
Drexel University
Kathleen Kelly, MPA
Executive Director
Family Caregiver Alliance
Patti Killingsworth
Assistant Commissioner and Chief
TennCare Long-Term Services and Supports
Sandy Markwood
Chief Executive Officer
N4A
Duane Mayes
Director
Division of Vocational Rehabilitation
Alaska Department of Labor and Workforce Development
Jenna McDavid
National Managing Coordinator
Diverse Elders Coalition
Susan Reinhard, RN, PhD, FAAN
Senior Vice President and Director
AARP Public Policy Institute
David Reuben, MD
Director, Multi-campus Program in Geriatrics Medicine and Gerontology
Chief, Division of Geriatrics,
University of California, Los Angeles
Dave Richard
Deputy Secretary
North Carolina Medicaid
North Carolina Department of Health and Human Services
Mary Sowers
Executive Director
National Association of State Directors of Developmental Disabilities Services
C. Grace Whiting, JD
President and CEO
National Alliance for Caregiving
Jennifer Wolff, PhD
Eugene and Mildred Lipitz Professor and Director
Roger C. Lipitz Center for Integrated Health Care
Johns Hopkins University
For more information, contact Eliza Mette.


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Family Caregiving Advisory Councils Sets Goals to Guide Creation of a National Strategy
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Paige Spradlin and Eliza MetteFamily Caregiving Advisory Council members convened for the second time as a full council on Feb. 11 and 12, 2020, to establish and refine the goals that will guide its creation of a National Family Caregiving Strategy. The strategy will include recommendations that government, communities, providers, and others can take to recognize and support family […]
Webinar: Family Caregiving Policies and Innovations
/in The RAISE Act Family Caregiver Resource and Dissemination Center Webinars Chronic and Complex Populations, Council Meeting Materials and Resources, Long-Term Care, State Resources, The RAISE Family Caregiver Resource and Dissemination Center The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffFamily caregivers provide an estimated $470 billion per year in unpaid care and are a critical component for states seeking to support older adults and individuals with complex needs stay in their homes and communities.
RAISE Family Caregiving Advisory Council Requests Input for Report
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe Administration for Community Living is requesting information from individuals and organizations to assist the RAISE Family Caregiving Advisory Council in developing goals, objectives and recommendations for an initial report to Congress and national family caregiving strategy, which are required by the RAISE Family Caregivers Act of 2017. The input will also help the council plan public listening […]
Family Caregiving Advisory Council (FCAC) Meeting Agenda
/in The RAISE Act Family Caregiver Resource and Dissemination Center Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffRecognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act Family Caregiving Advisory Council (FCAC) Meeting Holiday Inn, 550 C Street SW, Washington, DC 20024 August 28-29, 2019 Day 1 – August 28, 2019 Time Session description 8:30 – 9:00 AM Arrival/Sign-in: Non-federal Members Arrival & Registration 9:00 – 10:15 AM Session 1: Required Ethics […]
Family Caregiving Advisory Council Meeting Report
/in The RAISE Act Family Caregiver Resource and Dissemination Center Chronic and Complex Populations, Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffRequest for Proposals to Conduct Listening Sessions for the RAISE Family Caregiving Advisory Council
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home Chronic and Complex Populations, Chronic Disease Prevention and Management, Council Meeting Materials and Resources, Health Coverage and Access, Long-Term Care, Population Health, The RAISE Family Caregiver Resource and Dissemination Center, Workforce Capacity /by NASHP StaffNASHP Awarded New Grant on Family Caregiving from The John A Hartford Foundation
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs Care Coordination, Chronic and Complex Populations, Chronic Disease Prevention and Management, Community Health Workers, Cost, Payment, and Delivery Reform, Council Meeting Materials and Resources, Housing and Health, Long-Term Care, Medicaid Managed Care, Medicaid Managed Care, Palliative Care, Population Health, Primary Care/Patient-Centered/Health Home, Quality and Measurement, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP WritersNASHP has been awarded a three-year grant from The John A. Hartford Foundation to develop a comprehensive resource and dissemination center on family caregiving. The grant will fund NASHP’s RAISE Act Family Caregiver Resource and Dissemination Center, a national focal point for resources, technical assistance, and policy analysis for states and the broader community of […]