NASHP Chart: State Approaches to Family Caregiver Education, Training, and Counseling, May 2020. This chart and interactive map highlights education, training, and counseling services for family caregivers in state Medicaid waivers.
NASHP Tracker: States’ Appendix K Waivers of Home- and Community-Based Services, May 2020. This interactive map tracks states’ use of Appendix K waivers to modify services for older adults and their family caregivers during the COVID-19 crisis.
NASHP Blog: State Approaches to Family Caregiver Education, Training, and Counseling, April 2020. NASHP reviewed states’ Medicaid 1115 waivers and state plan amendments covering older adults and adults with physical disabilities to highlight their unique approaches to education, training and counseling for caregivers.
NASHP Blog: Five Ways States Can Better Meet the Needs of Caregivers, March 2020. As part of its work to help develop a national strategy to better support caregivers through its RAISE Act Family Caregiver Resource and Dissemination Center, the NASHP with support from The John A. Hartford Foundation, reviewed major caregiving reports, including 12 state reports, and identified the top five policy recommendations that all of the state reports had in common.
View a Webinar on Family Caregiving Policies and Innovations, Feb. 20, 2020. Funded by The John A. Hartford Foundation, NASHP’s RAISE Family Caregiver Resource and Dissemination Center hosted a webinar to discuss state and federal policies and initiatives to support family caregivers. The webinar provided an overview of the Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act and featured Tennessee and Washington State leaders who shared their policies and innovations to support family caregivers. Other participants included representatives from the US Administration for Community Living and The John A. Hartford Foundation. View the webinar here.
State Policy Innovations to Support Family Caregivers: States are developing new initiatives to support family caregivers, who provide nearly $470 billion in unpaid health care support and services each year to relatives, friends, and neighbors. Passage of the federal Recognize, Assist, Include, Support, and Engage Family Caregivers (RAISE) Act underscores the urgent attention this issue requires. This blog, State Policy Innovations to Support Family Caregivers, written with support from The John A. Hartford Foundation, explores Hawaii, Washington, and Minnesota’s innovative efforts to assist family caregivers.
The Family Caregiving Advisory Council
The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving Strategy that recommends actions that different stakeholders can take to support family caregivers and meets their diverse needs. The RAISE Act also requires the secretary to convene a Family Caregiving Advisory Council to help inform and shape the strategy by providing recommendations to the secretary.
The council is charged with preparing a report for the secretary that includes effective models of family caregiving and support to family caregivers, as well as opportunities to improve coordination across federal government programs. The secretary will incorporate the council’s report in the strategy, in addition to identifying best practices and other information to support family caregivers. The RAISE Act requires the council to be made up of to 15 voting members who reflect the diversity of family caregivers and care recipients, as well as non-voting representatives from federal departments and agencies who play a role in this issue.
Council Meeting Materials and Resources
In August 2019, the council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.
State Resources
State Policy Innovations to Support Family Caregivers: States are developing new initiatives to support family caregivers, who provide nearly $470 billion in unpaid health care support and services each year to relatives, friends, and neighbors. Passage of the federal Recognize, Assist, Include, Support, and Engage Family Caregivers (RAISE) Act underscores the urgent attention this issue requires. This blog, State Policy Innovations to Support Family Caregivers, written with support from The John A. Hartford Foundation, explores Hawaii, Washington, and Minnesota’s innovative efforts to assist family caregivers.
Faculty
Laura Gitlin, PhD
Dean, College of Nursing and Health Professions
Drexel University
Kathleen Kelly, MPA
Executive Director
Family Caregiver Alliance
Patti Killingsworth
Assistant Commissioner and Chief
TennCare Long-Term Services and Supports
Sandy Markwood
Chief Executive Officer
N4A
Duane Mayes
Director
Division of Vocational Rehabilitation
Alaska Department of Labor and Workforce Development
Jenna McDavid
National Managing Coordinator
Diverse Elders Coalition
Susan Reinhard, RN, PhD, FAAN
Senior Vice President and Director
AARP Public Policy Institute
David Reuben, MD
Director, Multi-campus Program in Geriatrics Medicine and Gerontology
Chief, Division of Geriatrics,
University of California, Los Angeles
Dave Richard
Deputy Secretary
North Carolina Medicaid
North Carolina Department of Health and Human Services
Mary Sowers
Executive Director
National Association of State Directors of Developmental Disabilities Services
C. Grace Whiting, JD
President and CEO
National Alliance for Caregiving
Jennifer Wolff, PhD
Eugene and Mildred Lipitz Professor and Director
Roger C. Lipitz Center for Integrated Health Care
Johns Hopkins University
For more information, contact Eliza Mette.


For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 
























































































































































Respite for ME: Maine’s New Respite Care Pilot for Family Caregivers
/in Policy, The RAISE Act Family Caregiver Resource and Dissemination Center Maine Blogs, Featured News Home State Resources /by Kimberly Hodges and Wendy Fox-GrageState Strategies to Support Family and Professional Caregivers
/in Policy, The RAISE Act Family Caregiver Resource and Dissemination Center Delaware, Illinois, New York, North Carolina, North Dakota, Washington Blogs, Featured News Home State Resources /by Ella Taggart and Wendy Fox-GrageNational Family Caregivers Month Twitter Chat — November 16, 2022
/in Policy, The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffState Policies to Support Family Caregivers: Lessons Learned from Six States in the RAISE Act State Family Caregiving Institute
/in Policy, The RAISE Act Family Caregiver Resource and Dissemination Center Connecticut, Delaware, Illinois, Maryland, New York, Utah Featured News Home, Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Luke Pluta-Ehlers, Salom Teshale and Wendy Fox-GrageMedicaid Structured Family Caregiving: Enabling Family Members to Make Caregiving Their Primary Focus
/in Policy, The RAISE Act Family Caregiver Resource and Dissemination Center Georgia, Missouri, South Dakota Featured News Home, Reports State Resources /by Neva KayeFamily caregivers play an important role in states’ efforts to help Medicaid beneficiaries safely remain in their communities. And, as of August 2022, at least seven states (Connecticut, Georgia, Indiana, Louisiana, Missouri, North Carolina, and South Dakota) covered structured family caregiving (SFC) services provided to older adults and/or people with physical disabilities under their Medicaid […]
RAISE Act State Policy Roadmap for Family Caregivers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffStates Cover Respite Care and Adult Day Services in Medicaid Managed Long-Term Services and Supports (MLTSS)
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Maps State Resources, The RAISE Family Caregiver Resource and Dissemination Center Respite Care /by Kimberly HodgesEngagement of Family Caregivers in Health Care Systems
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffState Respite Care Spending Is Low in Most Home and Community-Based 1915(c) Waivers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Maps State Resources Respite Care /by Kimberly HodgesState Caps on Respite Waiver Services Vary Greatly
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Maps State Resources, The RAISE Family Caregiver Resource and Dissemination Center Respite Care /by Kimberly HodgesUsing Research, Data, and Evidence-Informed Practices to Support Family Caregivers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffCommunity Health Workers and Oral Health
/in Community Health Workers Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffFamily Caregiver Services and Supports
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe Direct Care Workforce
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffFinancial and Workplace Security for Family Caregivers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffPublic Awareness and Outreach to Family Caregivers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffState Family Caregiving Task Forces
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Maps State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Luke Pluta-EhlersPaying Family Caregivers through Medicaid Consumer-Directed Programs: State Opportunities and Innovations
/in The RAISE Act Family Caregiver Resource and Dissemination Center Connecticut, Florida, Virginia Featured News Home, Reports Chronic and Complex Populations, Chronic Disease Prevention and Management, Consumer Affordability, Cost, Payment, and Delivery Reform, Health Coverage and Access, Health System Costs, Long-Term Care, Medicaid Managed Care, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center, Workforce Capacity /by Salom Teshale, Wendy Fox-Grage and Kitty PuringtonFamily members provide significant amounts of care to relatives with complex needs, including those who are Medicaid enrollees.
Spotlight on Home- and Community-Based Services: New Federal Opportunities?
/in COVID-19 Relief and Recovery Resource Center Blogs, Featured News Home Chronic and Complex Populations, Chronic Disease Prevention and Management, COVID-19, Health Coverage and Access, Medicaid Managed Care, Population Health, Relief and Recovery, Social Determinants of Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center, Workforce Capacity /by Kitty PuringtonOlder adults, people with disabilities, and their family caregivers have been hard hit by COVID 19. As states reel from the pandemic’s human and fiscal toll, policymakers are increasingly looking to home- and community-based services (HCBS) to address the pressing need for alternatives to nursing home care and supporting family caregivers who can help loved […]
Request for Applications for NASHP’s Second Health and Housing Institute – Due April 30, 2021
/in Policy Featured News Home Chronic and Complex Populations, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe National Academy for State Health Policy (NASHP), with support from the Health Resources and Services Administration (HRSA) through the National Organizations of State and Local Officials (NOSLO) program, invites states to apply to its second Health and Housing Institute. The goal of the Institute is to break down inter-agency silos and strengthen services and […]