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Washington Demonstrates Cost Savings and Improved Outcomes from Supporting Family Caregivers

- About the RAISE Act
The RAISE Family Caregiver Resource and Dissemination Center

The RAISE Family Caregiver Resource and Dissemination Center

The RAISE Act Family Caregiver Resource and Dissemination Center
Across the nation, state health programs depend on caregivers who provide critical support to help relatives, friends, and neighbors age in place while contributing about $470 billion in unpaid health care services each year. To better support family caregivers, Congress passed the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act in 2018, which established the Family Caregiving Advisory Council tasked with creating the country’s first national Family Caregiver Strategy.
To support the council’s work, NASHP has created the RAISE Act Family Caregiver Resource and Dissemination Center with support from The John A. Hartford Foundation to:
- Develop family caregiving resources for state and federal policymakers and other stakeholders;
- Provide support to the council and its subcommittee member as they craft policy recommendations;
- Convene experts and thought leaders to provide perspectives and expertise to the council; and
- Support states as they develop policies to address family caregiver issues.
HHS Releases First of Its Kind National Strategy on Family Caregiving
The far-reaching report details 350 recommendations across 15 federal agencies and includes actions for state and local governments, employers, and community organizations. Read the press release.
RAISE Council Report to Congress: Caregiver Stories
- In support of the RAISE Family Caregiving Advisory Council’s initial report to Congress and the subsequent National Family Caregiving Strategy, the National Alliance for Caregiving, the National Academy for State Health Policy, the Administration for Community Living and The John A. Hartford Foundation partnered to share the lived experience of family caregivers across the lifespan by highlighting their stories and emphasizing their needs to policy makers through a series of videos.
- View the videos of caregiver stories here. Read about the Report to Congress here.
The Family Caregiving Advisory Council
The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving Strategy that recommends actions that different stakeholders can take to support family caregivers and meets their diverse needs. The RAISE Act also requires the secretary to convene a Family Caregiving Advisory Council to help inform and shape the strategy by providing recommendations to the secretary.
The council is charged with preparing a report for the secretary that includes effective models of family caregiving and support to family caregivers, as well as opportunities to improve coordination across federal government programs. The secretary will incorporate the council’s report in the strategy, in addition to identifying best practices and other information to support family caregivers. The RAISE Act requires the council to be made up of to 15 voting members who reflect the diversity of family caregivers and care recipients, as well as non-voting representatives from federal departments and agencies who play a role in this issue.
Council Meeting Materials and Resources
In August 2019, the council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.
State Resources
State Policy Innovations to Support Family Caregivers: States are developing new initiatives to support family caregivers, who provide nearly $470 billion in unpaid health care support and services each year to relatives, friends, and neighbors. Passage of the federal Recognize, Assist, Include, Support, and Engage Family Caregivers (RAISE) Act underscores the urgent attention this issue requires. This blog, State Policy Innovations to Support Family Caregivers, written with support from The John A. Hartford Foundation, explores Hawaii, Washington, and Minnesota’s innovative efforts to assist family caregivers.
Faculty
Laura Gitlin, PhD
Dean, College of Nursing and Health Professions
Drexel University
Kathleen Kelly, MPA
Executive Director
Family Caregiver Alliance
Patti Killingsworth
Assistant Commissioner and Chief
TennCare Long-Term Services and Supports
Sandy Markwood
Chief Executive Officer
N4A
Duane Mayes
Director
Division of Vocational Rehabilitation
Alaska Department of Labor and Workforce Development
Jenna McDavid
National Managing Coordinator
Diverse Elders Coalition
Susan Reinhard, RN, PhD, FAAN
Senior Vice President and Director
AARP Public Policy Institute
David Reuben, MD
Director, Multi-campus Program in Geriatrics Medicine and Gerontology
Chief, Division of Geriatrics,
University of California, Los Angeles
Dave Richard
Deputy Secretary
North Carolina Medicaid
North Carolina Department of Health and Human Services
Mary Sowers
Executive Director
National Association of State Directors of Developmental Disabilities Services
C. Grace Whiting, JD
President and CEO
National Alliance for Caregiving
Jennifer Wolff, PhD
Eugene and Mildred Lipitz Professor and Director
Roger C. Lipitz Center for Integrated Health Care
Johns Hopkins University
For more information, contact Eliza Mette.
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For individuals living with complex, often chronic conditions, and their families, palliative care can provide relief from symptoms, improve satisfaction and outcomes, and help address critical mental and spiritual needs during difficult times. Now more than ever, there is growing recognition of the importance of palliative care services for individuals with serious illness, such as advance care planning, pain and symptom management, care coordination, and team-based, multi-disciplinary support. These services can help patients and families cope with the symptoms and stressors of disease, better anticipate and avoid crises, and reduce unnecessary and/or unwanted care. While this model is grounded in evidence that demonstrates improved quality of life, better outcomes, and reduced cost for patients, only a fraction of individuals who could benefit from palliative care receive it. 
























































































































































State Family Caregiving Task Forces
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Maps State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Luke Pluta-EhlersWhat Family Caregivers Need: Findings from Listening Sessions
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports The RAISE Family Caregiver Resource and Dissemination Center /by University of Massachusetts at Boston and Community CatalystRAISE Family Caregiving Advisory Council Votes the Report to Congress into Clearance
/in The RAISE Act Family Caregiver Resource and Dissemination Center Council Meeting Materials and Resources /by NASHP StaffPaying Family Caregivers through Medicaid Consumer-Directed Programs: State Opportunities and Innovations
/in The RAISE Act Family Caregiver Resource and Dissemination Center Connecticut, Florida, Virginia Featured News Home, Reports Chronic and Complex Populations, Chronic Disease Prevention and Management, Consumer Affordability, Cost, Payment, and Delivery Reform, Health Coverage and Access, Health System Costs, Long-Term Care, Medicaid Managed Care, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center, Workforce Capacity /by Salom Teshale, Wendy Fox-Grage and Kitty PuringtonFamily members provide significant amounts of care to relatives with complex needs, including those who are Medicaid enrollees.
Spotlight on Home- and Community-Based Services: New Federal Opportunities?
/in COVID-19 Relief and Recovery Resource Center Blogs, Featured News Home Chronic and Complex Populations, Chronic Disease Prevention and Management, COVID-19, Health Coverage and Access, Medicaid Managed Care, Population Health, Relief and Recovery, Social Determinants of Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center, Workforce Capacity /by Kitty PuringtonOlder adults, people with disabilities, and their family caregivers have been hard hit by COVID 19. As states reel from the pandemic’s human and fiscal toll, policymakers are increasingly looking to home- and community-based services (HCBS) to address the pressing need for alternatives to nursing home care and supporting family caregivers who can help loved […]
Request for Applications for NASHP’s Second Health and Housing Institute – Due April 30, 2021
/in Policy Featured News Home Chronic and Complex Populations, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe National Academy for State Health Policy (NASHP), with support from the Health Resources and Services Administration (HRSA) through the National Organizations of State and Local Officials (NOSLO) program, invites states to apply to its second Health and Housing Institute. The goal of the Institute is to break down inter-agency silos and strengthen services and […]
NASHP State PACE Action Network Request for Applications – Due April 15
/in Policy Featured News Home Chronic and Complex Populations, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe National Academy for State Health Policy (NASHP) is seeking applications to participate in its State Program of All-Inclusive Care for the Elderly (PACE) Action Network. The network will engage up to five teams of state leaders to expand access to their existing PACE programs. Lessons learned and best practices from this effort will be […]
NASHP State PACE Action Network Application for Technical Support May-December, 2021
/in Policy Chronic and Complex Populations, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThis application is designed to help the National Academy for State Health Policy (NASHP) understand each state applicant’s goals and objectives for participating in its State Program of All-Inclusive Care for the Elderly (PACE) Action Network. NASHP will select states for the network using the criteria described in the request for applications guidelines. Applications and any […]
Six States to Participate in NASHP’s Family Caregiving Institute
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe National Academy for State Health Policy (NASHP) has selected six states (CT, DE, IL, MD, NY, and UT) to participate in its State Medicaid Policy Institute on Family Caregiving. State teams will work with state leaders, NASHP staff, and experts to develop and strengthen policies and strategies that support family caregivers, with a particular focus on home- […]
RAISE Family Caregiving Advisory Council: January 2021 Meeting Summary
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Chronic and Complex Populations, Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Luke Pluta-Ehlers, Salom Teshale and Wendy Fox-GrageOn Jan. 19, 2021, the RAISE Family Caregiving Advisory Council convened to hear presentations on Medicaid supports for family caregivers, listening sessions with caregivers, and the compiling of a federal inventory of family caregiver resources and programs. The council also discussed the process for reviewing its initial report to Congress.