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Washington Demonstrates Cost Savings and Improved Outcomes from Supporting Family Caregivers

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The RAISE Family Caregiver Resource and Dissemination Center

The RAISE Family Caregiver Resource and Dissemination Center

The RAISE Act Family Caregiver Resource and Dissemination Center
Across the nation, state health programs depend on caregivers who provide critical support to help relatives, friends, and neighbors age in place while contributing about $470 billion in unpaid health care services each year. To better support family caregivers, Congress passed the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act in 2018, which established the Family Caregiving Advisory Council tasked with creating the country’s first national Family Caregiver Strategy.
To support the council’s work, NASHP has created the RAISE Act Family Caregiver Resource and Dissemination Center with support from The John A. Hartford Foundation to:
- Develop family caregiving resources for state and federal policymakers and other stakeholders;
- Provide support to the council and its subcommittee member as they craft policy recommendations;
- Convene experts and thought leaders to provide perspectives and expertise to the council; and
- Support states as they develop policies to address family caregiver issues.
HHS Releases First of Its Kind National Strategy on Family Caregiving
The far-reaching report details 350 recommendations across 15 federal agencies and includes actions for state and local governments, employers, and community organizations. Read the press release.
RAISE Council Report to Congress: Caregiver Stories
- In support of the RAISE Family Caregiving Advisory Council’s initial report to Congress and the subsequent National Family Caregiving Strategy, the National Alliance for Caregiving, the National Academy for State Health Policy, the Administration for Community Living and The John A. Hartford Foundation partnered to share the lived experience of family caregivers across the lifespan by highlighting their stories and emphasizing their needs to policy makers through a series of videos.
- View the videos of caregiver stories here. Read about the Report to Congress here.
The Family Caregiving Advisory Council
The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving Strategy that recommends actions that different stakeholders can take to support family caregivers and meets their diverse needs. The RAISE Act also requires the secretary to convene a Family Caregiving Advisory Council to help inform and shape the strategy by providing recommendations to the secretary.
The council is charged with preparing a report for the secretary that includes effective models of family caregiving and support to family caregivers, as well as opportunities to improve coordination across federal government programs. The secretary will incorporate the council’s report in the strategy, in addition to identifying best practices and other information to support family caregivers. The RAISE Act requires the council to be made up of to 15 voting members who reflect the diversity of family caregivers and care recipients, as well as non-voting representatives from federal departments and agencies who play a role in this issue.
Council Meeting Materials and Resources
In August 2019, the council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.
State Resources
State Policy Innovations to Support Family Caregivers: States are developing new initiatives to support family caregivers, who provide nearly $470 billion in unpaid health care support and services each year to relatives, friends, and neighbors. Passage of the federal Recognize, Assist, Include, Support, and Engage Family Caregivers (RAISE) Act underscores the urgent attention this issue requires. This blog, State Policy Innovations to Support Family Caregivers, written with support from The John A. Hartford Foundation, explores Hawaii, Washington, and Minnesota’s innovative efforts to assist family caregivers.
Faculty
Laura Gitlin, PhD
Dean, College of Nursing and Health Professions
Drexel University
Kathleen Kelly, MPA
Executive Director
Family Caregiver Alliance
Patti Killingsworth
Assistant Commissioner and Chief
TennCare Long-Term Services and Supports
Sandy Markwood
Chief Executive Officer
N4A
Duane Mayes
Director
Division of Vocational Rehabilitation
Alaska Department of Labor and Workforce Development
Jenna McDavid
National Managing Coordinator
Diverse Elders Coalition
Susan Reinhard, RN, PhD, FAAN
Senior Vice President and Director
AARP Public Policy Institute
David Reuben, MD
Director, Multi-campus Program in Geriatrics Medicine and Gerontology
Chief, Division of Geriatrics,
University of California, Los Angeles
Dave Richard
Deputy Secretary
North Carolina Medicaid
North Carolina Department of Health and Human Services
Mary Sowers
Executive Director
National Association of State Directors of Developmental Disabilities Services
C. Grace Whiting, JD
President and CEO
National Alliance for Caregiving
Jennifer Wolff, PhD
Eugene and Mildred Lipitz Professor and Director
Roger C. Lipitz Center for Integrated Health Care
Johns Hopkins University
For more information, contact Eliza Mette.
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Medicaid Supports for Family Caregivers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Chronic Disease Prevention and Management, Cost, Payment, and Delivery Reform, Council Meeting Materials and Resources, Long-Term Care, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Population Health, Program Design, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Neva Kaye and Salom TeshaleFamily caregivers help Medicaid enrollees safely stay in their own homes, prevent or delay hospital and nursing facility stays, and provide personal care services that Medicaid agencies would otherwise need to pay for. However, there are strong indications that family caregivers need additional supports, which would benefit the Medicaid enrollees in their care. Recognizing family […]
Webinar: Medicaid Supports for Family Caregivers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Webinars Chronic and Complex Populations, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffFamily caregivers play an important role in states’ efforts to help more Medicaid enrollees live in their own homes and communities.
Stand by Me: Supporting Long-Term Services and Supports Workers
/in The RAISE Act Family Caregiver Resource and Dissemination Center Oregon, Tennessee Chronic and Complex Populations, Health Coverage and Access, Health Equity, Long-Term Care, Population Health, Social Determinants of Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center, Workforce Capacity /by Wendy Fox-GrageDirect care workers play a critical role in the success of states’ long-term services and supports (LTSS) systems, but faced with COVID-19, low wages, and few advancement opportunities, states struggle to retain this workforce. Recently, state leaders came together virtually at National Academy for State Health Policy’s annual conference to share strategies to improve recruitment […]
Family Caregiving Advisory Council Refines Goals to Guide National Strategy
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Chronic and Complex Populations, Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Paige SpradlinThe Family Caregiving Advisory Council heard expert presentations on the intersection between the National Alzheimer’s Project Act (NAPA) Council and its own mission to guide the creation of a national caregiving strategy during its Aug. 12, 2020 meeting. The caregiving council is tasked by the Recognize, Assist, Include, Support, and Engage Family Caregivers Act of […]
NASHP’s Report on Medicaid Family Caregiver Supports to Inform the RAISE Act Report to Congress
/in The RAISE Act Family Caregiver Resource and Dissemination Center Chronic and Complex Populations, Council Meeting Materials and Resources, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe National Academy for State Health Policy (NASHP) is developing a report on how family caregiving impacts state Medicaid programs, and the role Medicaid plays in supporting family caregivers. Medicaid — jointly funded and administered by the federal and state governments — provides health coverage to millions of Americans, including low-income adults, children, older adults, and people with disabilities. Relatives and friends […]
Medicare and Medicaid Experts and Caregivers Share How to Improve Caregiving Support
/in The RAISE Act Family Caregiver Resource and Dissemination Center Chronic and Complex Populations, Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Paige Spradlin and Salom TeshaleThe Family Caregiving Advisory Council held its fourth full council meeting on July 16, 2020, to hear expert presentations on Medicare and Medicaid and recommendations from family caregivers to improve caregiving support in the United States. The council is tasked with creating a National Family Caregiving Strategy, as required by the Recognize, Assist, Include, Support, and Engage Family […]
Family Caregiving Council Receives Public Input and Expertise to Create Recommendations
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Paige Spradlin, Salom Teshale and Wendy Fox-GrageThe Family Caregiving Advisory Council held its third full council meeting on May 20 and 21, 2020, to hear presentations on key topic areas, including family leave, respite care, research and data, and an analysis of the input received from the Administration for Community Living’s (ACL) request for information. The council also refined its Driver Diagram to identify […]
NASHP Awards Contracts to National Alliance for Caregiving and Advancing States to Support the RAISE Family Caregiving Council with Funding from The John A. Hartford Foundation
/in The RAISE Act Family Caregiver Resource and Dissemination Center Council Meeting Materials and Resources, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffTo better address the needs of family caregivers, the National Academy for State Health Policy (NASHP) has awarded contracts to National Alliance for Caregiving (NAC) and ADvancing States. Under the contracts, ADvancing States will conduct listening sessions with state aging and disability officials and NAC will hold a listening session with family caregiver advocates and to collect family caregiver vignettes. These activities […]
State Approaches to Family Caregiver Education, Training and Counseling in Medicaid Home- and Community-Based Services
/in The RAISE Act Family Caregiver Resource and Dissemination Center Charts, Featured News Home, Maps Chronic and Complex Populations, Chronic Disease Prevention and Management, Health Coverage and Access, Palliative Care, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center, Workforce Capacity /by Salom TeshaleState Approaches to Family Caregiver Education, Training, and Counseling
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Chronic and Complex Populations, Chronic Disease Prevention and Management, COVID-19, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Salom Teshale, Eliza Mette, Paige Spradlin and Wendy Fox-GrageState Medicaid home- and community-based waivers and state plan amendments can provide critical information, counseling, and training to family caregivers. Recently, the National Academy for State Health Policy (NASHP) reviewed states’ Medicaid 1915(c) and 1115 waivers, and 1915(i) and 1915(j) state plan amendments (SPAs) that focuses on waivers and state plan amendments covering older adults […]