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Washington Demonstrates Cost Savings and Improved Outcomes from Supporting Family Caregivers

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The RAISE Family Caregiver Resource and Dissemination Center

The RAISE Family Caregiver Resource and Dissemination Center

The RAISE Act Family Caregiver Resource and Dissemination Center
Across the nation, state health programs depend on caregivers who provide critical support to help relatives, friends, and neighbors age in place while contributing about $470 billion in unpaid health care services each year. To better support family caregivers, Congress passed the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act in 2018, which established the Family Caregiving Advisory Council tasked with creating the country’s first national Family Caregiver Strategy.
To support the council’s work, NASHP has created the RAISE Act Family Caregiver Resource and Dissemination Center with support from The John A. Hartford Foundation to:
- Develop family caregiving resources for state and federal policymakers and other stakeholders;
- Provide support to the council and its subcommittee member as they craft policy recommendations;
- Convene experts and thought leaders to provide perspectives and expertise to the council; and
- Support states as they develop policies to address family caregiver issues.
HHS Releases First of Its Kind National Strategy on Family Caregiving
The far-reaching report details 350 recommendations across 15 federal agencies and includes actions for state and local governments, employers, and community organizations. Read the press release.
RAISE Council Report to Congress: Caregiver Stories
- In support of the RAISE Family Caregiving Advisory Council’s initial report to Congress and the subsequent National Family Caregiving Strategy, the National Alliance for Caregiving, the National Academy for State Health Policy, the Administration for Community Living and The John A. Hartford Foundation partnered to share the lived experience of family caregivers across the lifespan by highlighting their stories and emphasizing their needs to policy makers through a series of videos.
- View the videos of caregiver stories here. Read about the Report to Congress here.
The Family Caregiving Advisory Council
The impact of the nation’s aging population on state budgets and policies cannot be addressed without understanding the needs of family caregivers. Under the RAISE Act, the Secretary of the Department of Health and Human Services must develop a national Family Caregiving Strategy that recommends actions that different stakeholders can take to support family caregivers and meets their diverse needs. The RAISE Act also requires the secretary to convene a Family Caregiving Advisory Council to help inform and shape the strategy by providing recommendations to the secretary.
The council is charged with preparing a report for the secretary that includes effective models of family caregiving and support to family caregivers, as well as opportunities to improve coordination across federal government programs. The secretary will incorporate the council’s report in the strategy, in addition to identifying best practices and other information to support family caregivers. The RAISE Act requires the council to be made up of to 15 voting members who reflect the diversity of family caregivers and care recipients, as well as non-voting representatives from federal departments and agencies who play a role in this issue.
Council Meeting Materials and Resources
In August 2019, the council convened for its first meeting and members shared their guiding values and principles. Read the Family Caregiving Advisory Council Meeting Report for a comprehensive description of the meeting. Review the agenda for the day, which includes the PowerPoint presentations used by presenters during the meeting, and watch the full video of the council’s kick-off meeting.
State Resources
State Policy Innovations to Support Family Caregivers: States are developing new initiatives to support family caregivers, who provide nearly $470 billion in unpaid health care support and services each year to relatives, friends, and neighbors. Passage of the federal Recognize, Assist, Include, Support, and Engage Family Caregivers (RAISE) Act underscores the urgent attention this issue requires. This blog, State Policy Innovations to Support Family Caregivers, written with support from The John A. Hartford Foundation, explores Hawaii, Washington, and Minnesota’s innovative efforts to assist family caregivers.
Faculty
Laura Gitlin, PhD
Dean, College of Nursing and Health Professions
Drexel University
Kathleen Kelly, MPA
Executive Director
Family Caregiver Alliance
Patti Killingsworth
Assistant Commissioner and Chief
TennCare Long-Term Services and Supports
Sandy Markwood
Chief Executive Officer
N4A
Duane Mayes
Director
Division of Vocational Rehabilitation
Alaska Department of Labor and Workforce Development
Jenna McDavid
National Managing Coordinator
Diverse Elders Coalition
Susan Reinhard, RN, PhD, FAAN
Senior Vice President and Director
AARP Public Policy Institute
David Reuben, MD
Director, Multi-campus Program in Geriatrics Medicine and Gerontology
Chief, Division of Geriatrics,
University of California, Los Angeles
Dave Richard
Deputy Secretary
North Carolina Medicaid
North Carolina Department of Health and Human Services
Mary Sowers
Executive Director
National Association of State Directors of Developmental Disabilities Services
C. Grace Whiting, JD
President and CEO
National Alliance for Caregiving
Jennifer Wolff, PhD
Eugene and Mildred Lipitz Professor and Director
Roger C. Lipitz Center for Integrated Health Care
Johns Hopkins University
For more information, contact Eliza Mette.
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In Their Own Words: Family Caregivers from Across the Country Share their Priorities and Recommendations
/in The RAISE Act Family Caregiver Resource and Dissemination Center Featured News Home, Reports Chronic and Complex Populations, Council Meeting Materials and Resources, Long-Term Care, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffA new report published by NASHP’s RAISE Family Caregiver Resource and Dissemination Center documents the concerns and recommendations for change shared by 1,613 family caregivers and organizations that work with them. The US Administration for Community Living (ACL) requested input for its report, In Their Own Words: Caregiver Priorities and Recommendations: Results from a Requests […]
State Approaches to Reimbursing Family Caregivers of Children and Youth with Special Health Care Needs through Medicaid
/in The RAISE Act Family Caregiver Resource and Dissemination Center Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, Chronic and Complex Populations, Chronic Disease Prevention and Management, Cost, Payment, and Delivery Reform, COVID-19, EPSDT, Health Equity, Integrated Care for Children, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Medicaid Managed Care, Population Health, Quality and Measurement, Social Determinants of Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Olivia Randi, Eskedar Girmash and Kate HonsbergerNASHP State Medicaid Policy Institute on Family Caregiving: Request for Applications
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Chronic and Complex Populations, Council Meeting Materials and Resources, COVID-19, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe National Academy for State Health Policy (NASHP), with generous support from The John A. Hartford Foundation, is seeking state applications to participate in its State Medicaid Policy Institute on Family Caregiving. The institute will engage up to five teams of state leaders for one year to develop and/or strengthen health policies and strategies that support […]
Webinar: RAISE Act, State Policies, and NASHP’s State Medicaid Policy Institute on Family Caregiving
/in The RAISE Act Family Caregiver Resource and Dissemination Center Webinars Chronic and Complex Populations, Council Meeting Materials and Resources, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffRAISE Family Caregiving Advisory Council Votes to Approve Council Recommendations for Inclusion in Initial Report to Congress
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Chronic and Complex Populations, Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffOn Nov. 18, 2020, the RAISE Family Caregiving Advisory Council convened to review and vote on a set of recommendations to support family caregivers, across the lifespan, for inclusion in its initial report to Congress. The council is tasked with creating a National Family Caregiving Strategy, as required by the Recognize, Assist, Include, Support, and […]
States Use Appendix Ks to Provide Innovative Flexibilities for Medicaid Enrollees and Caregivers during COVID-19
/in The RAISE Act Family Caregiver Resource and Dissemination Center Connecticut, Georgia, Washington Blogs, Featured News Home Care Coordination, Chronic and Complex Populations, Cost, Payment, and Delivery Reform, COVID-19, Long-Term Care, Medicaid Managed Care, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Salom Teshale, Paige Spradlin, Wendy Fox-Grage and Kitty PuringtonDuring the COVID-19 pandemic, states have used the Appendix K Emergency Preparedness and Response authority to amend Medicaid 1915(c) home- and community-based services (HCBS) waivers and quickly provide more flexible services and supports to Medicaid enrollees and, indirectly, their caregivers.
NASHP Expands Family Caregiving Work with Grants from RRF Foundation for Aging and the US Administration for Community Living
/in The RAISE Act Family Caregiver Resource and Dissemination Center Blogs, Featured News Home Chronic and Complex Populations, Council Meeting Materials and Resources, The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe National Academy for State Health Policy (NASHP) recently received two grants to expand its work supporting family caregivers, which began last year when it launched the Family Caregiver Resource and Dissemination Center to support creation of the country’s first national family caregiver strategy. Congress passed the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers […]
States Work to Improve Long-Term Care in the Age of COVID-19
/in The RAISE Act Family Caregiver Resource and Dissemination Center Ohio, Washington, Wisconsin Blogs, Featured News Home Care Coordination, Chronic and Complex Populations, COVID-19, Health Equity, Long-Term Care, Medicaid Managed Care, Physical and Behavioral Health Integration, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Paige SpradlinNursing home residents account for at least one-third of COVID-19 deaths, and this disparity reveals numerous problems with infection control in institutional settings. As a result, many states are rethinking and restructuring their long-term services and supports (LTSS) programs. A recent National Academy for State Health Policy (NASHP) annual conference session explored what states have […]
Public Insurance Financing of Home Visiting Services: Insights from a Federal/State Discussion
/in Policy Blending and Braiding Funding, Care Coordination, Children/Youth with Special Health Care Needs, Children/Youth with Special Health Care Needs, CHIP, CHIP, Chronic and Complex Populations, Chronic Disease Prevention and Management, Health Coverage and Access, Integrated Care for Children, Long-Term Care, Maternal, Child, and Adolescent Health, Medicaid Managed Care, Physical and Behavioral Health Integration, Population Health, State Resources, The RAISE Family Caregiver Resource and Dissemination Center /by Taylor Platt and Karen VanLandeghemNational Family Caregivers Month Twitter Chat hosted by NASHP
/in The RAISE Act Family Caregiver Resource and Dissemination Center Chronic and Complex Populations, Council Meeting Materials and Resources, Long-Term Care, State Resources, The RAISE Family Caregiver Resource and Dissemination Center The RAISE Family Caregiver Resource and Dissemination Center /by NASHP StaffThe National Academy for State Health Policy (NASHP) is hosting a Twitter chat to recognize National Family Caregivers Month. Across the nation, state health programs depend on caregivers who provide critical support to help relatives, friends, and neighbors stay safely in their homes while contributing $470 billion in unpaid health care services each year. Family […]